Showing posts with label Pancreas. Show all posts
Showing posts with label Pancreas. Show all posts

Friday, April 1, 2011

Remembering

I remember this day 2 years ago like it was yesterday. Everything is still so fresh in my mind.  Sometimes I wish it wasn't but I want to remember everything. I want to be able tell her someday, if she wants to know. (I still shoot myself for not taking any pictures of Lovebug when she was in the hospital.  I don't know if she will remember it or not. Probably not though, Lovebug had just turned 3.

Her birthday  was delayed that year due to me being sick. I had come down with the flu and just did not have the energy to get stuff around, so we moved it back another week.  It was the first time we had thrown her a Birthday party.  Since Lovebug has a March birthday and we have a small house it's hard to hold parties inside.  We decided to go for it anyway that year.  It was a wonderful party filled with lots of memories.
She was just starting to get into Fancy Nancy and we had a Fancy Nancy theme. At the time you could barely find anything Fancy Nancy because the books hadn't been out very long

Those memories that are so hard for me now.  I see her pictures and think, that was before.  Even though there are a few things about that day....her dress my sister had gotten her actually fit.  She was in a 4t at the time and my sister got a 3t.  I thought maybe the sizes ran big.  That was not the case at all.  She was loosing weight and I didn't even see it.  How could I though, I had now idea.

It was a week later that the symptoms started showing up.  The ones I didn't recognize because I didn't know. The wetting of the bed.  Drinking ALL the time.  Moodiness, MORE then normal for her. Her appetite started to decrease. She started having blue lips.  I thought she was just cold all the time.  Sheesh. I wish I would have known.

It's hard for me too look at her pictures from before.  It's bittersweet.  I enjoyed the 3 years of her life that were diabetes free, and miss them.  I miss just being able to run out the door and not have to have her diabetes bag with us. Gone are the days of letting just anyone take care of her.  How I would love to not have to measure and weigh food every time she wants to eat. To her, this will be normal, forever.  I am sad she will never know any different.  Yet, at peace because I know that God is in control of her life and He know's what He is doing, even though I may not understand.

I thought 2 years into this it would be easier.  I thought I would have it all figured out by now.....little did I know.  You don't ever have diabetes figured out.  It's a day to day thing.  Every day is different, yet sometimes you might get lucky enough to have a few good days in a row. Those good days can carry you though the bad days or they can make those bad days harder and more frustrating.  It just depends.  It really just depends.

Yes, diabetes is becoming more "normal" around here but there are still times, in the busyness of life that I will forget to check her blood sugar before we eat.  Just yesterday I forgot to bolus her for lunch.  How in the world I forget to do that after 2 years is beyond me. (oh yeah, I know why...insomnia will do that do you!)  It should be second nature to my by now, but sometimes it's just not. Maybe it's because I don't want it to be.  Yet I do.  I want everything to run smoothly and not have it feel like such a burden to have to stop and check her blood sugar when needed.

After 2 years I believe the reality is really starting to set in. Lovebug is much more aware now. Not of her highs and lows so much (although she is getting better with that) as the fact that she is different from her sisters, friends and other kids her age.  She is also starting to be interested in her care.  Which for me is bittersweet.  I am so proud of her yet at the same time I really wish she could just be a normal kid and not have to worry about diabetes. (I know all of us D Mamas have that same wish) I have always said I would let her take the lead in her care and she wouldn't do anything until she was ready to do it.  So as she is ready and asks, I will show her and teach her. Lucky me, she has just become MUCH more interested in her care and doing stuff by herself.

So here is to another year of living with diabetes, all the good the bad and everything in between.



Monday, October 11, 2010

Here I go....again.

It must be that time again.  There has been too much  peace around our house when it comes to Lovebug's blood sugar numbers.  It's time to start messing things up a little bit cause everyone knows that I just LOVE a mess. (sarcasm intended here.) A tweak here and a tweak there.  Then add in some good old analyzing and some more testing and re-testing. 


You see, this is the nature of Diabetes.  One day is never the same as the next.  What works one day (week, month or hour for that matter!) may not work another day.  Being a pancreas is a hard job.  Especially when I am not actually a pancreas.  I was created to be a wife and mother.  Then the Lord, with his wonderful sense of humor, decided to put pancreas on the list too.  Um, not fair and not my choice. Then again, I don't get a choice.  I just get the wonderful job of trying to act and think like a pancreas 24/7. I wish someone would hand me the specifications for this job because I'm pretty sure I'm not qualified.  I know that God won't give us more then we can handle, but I have to admit, there are days that I doubt that. 


With that said, all the lows and high blood sugars around here are starting to give me a stomach ache. They are INSANE!!  Highs and lows that I have no idea where they are coming from.  A couple weeks ago I accounted them to Lovebug being on antibiotics. The antibiotics are long out of her system by now. Now my mother's intuition is telling me I might be dealing with more then just crazy blood sugar numbers.... I just went down a very large hill on a roller coaster and feel like I lost my lunch.  I probably shouldn't have eaten right before that hill, but then I didn't see it coming. I rarely ever do. 


So here we go on this roller coaster again.  All the mental "planning" I did preparing for this just didn't work.  I am still flustered and exasperated.  Adding school into the mix is making it worse to.  How can I tweak doses when she has to go to school???  Yikes.  Just when I think I am  really starting to get things down, WHAM  here comes more "math" for me to figure out.  


Oh well, I'll figure things out. Eventually.  Then I'll have to figure them out all over again.  It's just they way life with Diabetes goes.  I just wish it got easier....





Monday, July 19, 2010

Our Numbers, Being a Pancreas and Apidra.

F-R-U-S-T-R-A-T-I-N-G

That is the only way to describe them.

What is "them" you ask?

NUMBERS!!

First of all, I hate numbers.  I hate math to be quite frank.  But the good Lord has a sense of humor and gave me a job that involves math.  LOTS OF IT.

What job it is you ask?  Motherhood? Nope.
That job would be: Pancreas.  I have to be a pancreas for Love Bug, which requires a lot of MATH.

Being a pancreas hasn't been going so well lately. (remember I didn't exactly ask for this job, or purse it it for that matter.) Love Bug's number's have been all over the place.  Dexie looks like she is ride a roller coaster.  It's not pretty.

It is not because I haven't tried either.  I have tried everything I could think of.  We changed I:C ratio's.  Then we tried basal rates. Then we added more basal rates.  Then the basal rates were too high.  Then they weren't enough.

I have noticed some improvement. Very little though, and it's frustrating.  So frustrating that after 2 months of these roller coaster numbers  I decided to do something about it.

I heard other D-Moms doing it and wondered if it would be right for us.  I researched, I listened to other D-moms and talked to them about it.

I had decided to wait until our next Endocrine appointment and talk to the doctor about it.  Then on Friday I found out we wouldn't have out next appointment until September and decided that I couldn't wait that long.

I called and talked to Miss Sally (our wonderful CDE) and she agreed it might help.

So, this morning I went to the Endocrine's office picked up a bottle this: 




Yep, I jumped on the Apidra "band wagon"  but not just because everyone else is "doing it".
I did it to (hopefully) get Love Bug's numbers under control.

Because you see, I don't just jump on "band wagons" lightly, especially when it comes to my daughters health.

I do research, get advice and pray about it.  That is the only way I know how to do things.

Now, I'm praying that it works!

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