NaBloPoMo Day 6
Our new normal is ever getting a full nights sleep.
Our new normal is waking up usually at 11p, 2am and sometimes 4a just to make sure Lovebug is still alive. Or being woke up by Dexie our CGM, who is an extra layer of protection for Lovebug. Dexie helps us watch over her at night in between blood sugar checks.
Our new normal is having Lovebug sleep in our room when we are have to change basal rates and need to check her blood sugar every hour through out the night.
Our new normal is waking up every morning and worrying that the worst has happened in the couple hours since you last checked her blood sugar.
Our new normal is checking blood sugars before breakfast while figuring out the number of carbs in the meal. It's knowing whether or not those carbs spike her blood sugar and if we need to do a normal bolus, or a combo bolus. It's figuring out how much extra insulin to give her if her blood sugar is above her normal range or how much less to give her if her blood sugar is lower then it should be.
Our new normal is checking Lovebug's blood sugar every time we walk out the door because we don't want to have to pull over to the side of the road because of a low blood sugar.
Our new normal is making sure we carry her emergency kit filled with infusion sites, glucagon, snacks for low blood sugar, glucose tablets and gel, juice, alcohol wipes, and extra test strips every time we walk out the door.
Our new normal is having to be late getting somewhere or not got at all because Lovebug's blood sugar is too high or too low.
Our new normal is not being able to sit through a entire sermon at church because Lovebug's number comes up almost every week.
Our new normal is continually being attached to my phone when I am away from home or when Lovebug is at school. That way if anything happens, they can get a hold of me. My cell phone is her life line.
Our new normal is remembering to give a temporary basal rate if Lovebug will be outside running around or anything else that may make her overly excited. It's also making sure she gets an extra 10 to 15 carb snack with some protein to keep her blood sugar up. Because her blood sugar tends to drop with excitement.
Our new normal is checking blood sugars before lunch while figuring out carbs in the meal. (repeating breakfast all over again) It's knowing whether or not those carbs spike her blood sugar and if we need to do a normal bolus, or a combo bolus. It's figuring out how much extra insulin to give her if her blood sugar is above her normal range or how much less to give her if her blood sugar is lower then it should be.
Our new normal is having to figure out why her blood sugar drops when it should be spiking from a meal. It's also making sure that Lovebug doesn't spike more then 80 to 100 points after she eats from where her blood sugar is at before she eats. Simply put, it's not good if her blood sugar number is high because that means it will get even higher before her bolus for food and correction dose for the high blood sugar bring her back down into her normal range.
Is it all making your head spin yet??? There is more.
Our new normal is having Lovebug come to me saying she pulled her infusion site out, right after nap time when everyone is waking up and getting home from school. The busiest time of the day and I have to stop EVERYTHING and insert another infusion site because she has to have it in. Even minutes off of her pump can mean her blood sugar going up. Hours can lead to high blood sugar and ketones, which can lead to a hospital visit if not caught soon enough.
Our new normal is having to make sure we eat dinner right around 5/5:30 so that Lovebug's blood sugar isn't too high before bedtime.
Our new normal is checking blood sugar every night before bed and two hours after she goes to bed.
Our new normal is being interrupted during our evenings together because Dexie has woke Lovebug up with a high or low blood sugar.
Our new normal is Dexie waking Lovebug up every time she has a high or low blood sugar overnight. It's hard to see her get woke up and come downstairs half awake.
Our new normal is never getting a lazy day. There is never a day that I can just be lazy and not check blood sugars or choose to not give insulin. Lazy days are behind us, they don't exist anymore.
Our new normal is a trip to the endocrinologist's office every 3 months. And calling our CDE when ever we can't figure something out.
Our new normal is sick days that require calling into the the endocrine's office every couple hours is Lovebug's blood sugar is high and there are ketones. Or if her blood sugar is low and she has ketones.
Our new normal is worrying ever time Lovebug gets sick that this may mean a trip to the hospital. Because just the stomach flu and land her in the hospital or ER pretty easily.
Our new normal is never totally free from worry, however hard we try.
This is our new normal. It is just a glimpse of what we do on a daily basis to keep Lovebug