Wednesday, January 18, 2012

The Results are In!

Lovebug's Celiac test came back Negative!! 

I am both happy and relieved that we don't have to deal with this right now.  I'm not sure how I would have handled another T1 diagnosis and a Celiac Diagnosis with a year.  Not to mention there is just so much going on right now, I really didn't need one more thing on my plate to "worry" about. 

I have to admit, I was fully expecting the test to come back positive.  I honestly asked the nurse twice if she was reading it right. I guess after 4 months of waiting and wondering I just expected that we would go through all the issues, the blood tests and the biopsy and it would come back positive. (even though that was really the last thing I wanted.) I really had prepared my heart and mind for the nurse to say that the biopsy came back positive. 

 In all honesty, I am happy that it was negative but also a little annoyed. I just went through 4 months of not knowing, worrying and putting Lovebug through blood tests and a biopsy,. just to have it come back negative.   It almost doesn't seem worth all the stress it caused me and Lovebug.   

Her antibodies weren't elevated very high, just a little.  She had very few symptoms.  I know the doctor recommended the biopsy, to be sure. Looking back, I'm not so sure I would do it. We could have just done follow up blood tests every 3 months instead. The doctor said it was an option, but I thought and he recommended that we go through with the biopsy to be sure. Lovebug will have to get re-tested in 6 months and we "may" have to go through all this over again. But next time I will look at things a lot differently. I have an number in my head that if her antibodies aren't over that number, we aren't going to do another biopsy. (unless of course she is having symptoms) I just can't go through all this stress over and over again just to have it come back negative.  I don't want to put Lovebug through this over and over again. 

At least now the stress of the past 4 months can start loosing it's grip on me and I can concentrate on other things! 

8 comments:

Ann said...

I've been thinking about your family after reading about what you've been going through- so glad to hear that the tests came back negative!!

Anonymous said...

Thank God! Enough is enough. I agree, and think standard of doing biopsies is invasive and wait for higher antibody test number. She may not have higher numbers. Praying for continued health for your girls.

Stephanie said...

That is wonderful news! I bet you are so relieved. :)

Nikki of Our Diabetic Warrior said...

YEAH!!!!!! I'm so glad that the biopsy came back negative. Praise God! I went through a biopsy myself that came back negative. Don't beat yourself up. Sometimes that's the only way you can catch it. It's worth getting the biopsy since celiac can cause a lot of issues if not caught.

I'm glad that they'll be keeping a good eye on her!

Misty said...

I was so happy to hear that the biopsy was negative. Don't second guess your decision to have the biopsy done. If you hadn't, you may still be stressed with the "un-knowing". Let your mind have peace.

NikDuck said...

I am so happy to hear the results were negative! Praying the good news continues for your family.

Denise aka 'Mom of Bean' said...

So glad you have the results...and that they are negative!

Alexis Nicole said...

Whoohoo that's awesome!! Praying for. Next 6 months!

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